Access to the Raine Study

The Raine Study Executive Committee encourages the research community to investigate the enormous potential of this unique cohort. The Raine Study is a supported access resource and access to data is achieved through collaboration with members of an existing Project Group. 

If you wish to work with the Raine Study you should complete a Raine Study Expression of Interest Form describing your proposed project and send the form to the Study Manager at the Raine Study Secretariat (rainestudy@ichr.uwa.edu.au). The Raine Secretariat will let you know if the collaboration is possible and to provide advice on the next stage.

The Raine Study receives funding for core activities. These do not extend to support individual projects and collaborators will be expected to meet additional costs. Protecting the confidentiality of the participating study families is of primary concern.

No collaborators have access to the cohort individuals.  The Raine Study Executive has the responsibility to ensure that all study outputs are reliable and valid, that the integrity of the project and the investigative team is maintained, and that the study participants are protected.